{"id":2367,"date":"2017-09-30T13:05:21","date_gmt":"2017-09-30T13:05:21","guid":{"rendered":"http:\/\/rda-al.com\/blog\/?p=2367"},"modified":"2017-09-30T13:42:04","modified_gmt":"2017-09-30T13:42:04","slug":"tashme-anetare-te-eurordis","status":"publish","type":"post","link":"http:\/\/rda-al.com\/sq\/tashme-anetare-te-eurordis\/","title":{"rendered":"Tashm\u00eb an\u00ebtar\u00eb t\u00eb EURORDIS"},"content":{"rendered":"<p>Shoqata Shqiptare e S\u00ebmundjeve t\u00eb Rralla b\u00ebhet pjes\u00eb e <a href=\"http:\/\/www.eurordis.org\/\">Eurordis<\/a> (European Association of Rare Diseases)<\/p>\n<p><strong>EURORDIS<\/strong> &#8211; Shoqata Europiane e S\u00ebmundjeve t\u00eb Rralla \u00ebsht\u00eb unike n\u00eb llojin e saj, nj\u00eb bashkim jofitimprur\u00ebs i mbi \u00a0700 organizatave t\u00eb pacient\u00ebve t\u00eb s\u00ebmundjeve t\u00eb rralla nga mbi 60 v\u00ebnde t\u00eb ndryshme q\u00eb bashk\u00ebpunojn\u00eb p\u00ebr p\u00ebrmir\u00ebsimin e jet\u00ebve t\u00eb 30 milion personave q\u00eb vuajn\u00eb nga s\u00ebmundje t\u00eb rralla n\u00eb Europ\u00eb.<\/p>\n<p>N\u00ebp\u00ebrmjet lidhjeve mes pacient\u00ebve, familjeve dhe grupeve t\u00eb pacient\u00ebve, si dhe duke i bashkuar t\u00eb gjith\u00eb t\u00eb interesuarit dhe duke mobilizuar komunitetin e pacient\u00ebve t\u00eb s\u00ebmundjeve t\u00eb rralla, <strong>EURORDIS<\/strong> forcon z\u00ebrin e pacient\u00ebve dhe form\u00ebson k\u00ebrkimet shkencore, politikat dhe sh\u00ebrbimet ndaj pacient\u00ebve.<\/p>\n<p>S\u00eb bashku me Eurordis Shoqata jon\u00eb synon t\u00eb p\u00ebrparoj\u00eb n\u00eb k\u00ebto drejtime:<\/p>\n<p>Vizioni yn\u00eb \u00ebsht\u00eb t\u00eb mund\u00ebsojm\u00eb<strong> p\u00ebrmir\u00ebsimin e jet\u00ebs dhe kurave p\u00ebr pacient\u00ebt me s\u00ebmundje t\u00eb rralla.<\/strong><\/p>\n<p>Misioni yn\u00eb \u00ebsht\u00eb t\u00eb <strong>bashk\u00ebpunojm\u00eb p\u00ebrmes kufijve dhe s\u00ebmundjeve p\u00ebr p\u00ebrmir\u00ebsimin e jet\u00ebve t\u00eb pacient\u00ebve q\u00eb jetojn\u00eb me nj\u00eb s\u00ebmundje t\u00eb rrall\u00eb.<\/strong><\/p>\n<p>&nbsp;<\/p>\n<p>P\u00ebr k\u00ebt\u00eb q\u00ebllim, <strong>EURORDIS<\/strong> organizon aktivitete n\u00eb em\u00ebr t\u00eb an\u00ebtar\u00ebve t\u00eb vet, n\u00eb favor t\u00eb:<\/p>\n<ul>\n<li>Fuqizimit t\u00eb grupeve t\u00eb pacient\u00ebve me s\u00ebmundje t\u00eb rralla<\/li>\n<li>Propagandimit t\u00eb s\u00ebmundjeve t\u00eb rralla si problem i gjith\u00eb sh\u00ebndetit publik.<\/li>\n<li>Ngritjen e v\u00ebmendjes dhe nd\u00ebrgjegj\u00ebsimin ndaj s\u00ebmundjeve t\u00eb rralla si t\u00eb institucioneve komb\u00ebtare edhe atyre nd\u00ebrkomb\u00ebtare.<\/li>\n<li>P\u00ebrmir\u00ebsimin e marrjes s\u00eb informacionit, trajtimit, kujdesit dhe mb\u00ebshtetjes p\u00ebr njer\u00ebzit q\u00eb jetojn\u00eb me s\u00ebmundjet e rralla.<\/li>\n<li>Inkurajimi i praktikave m\u00eb t\u00eb mira n\u00eb lidhje me to.<\/li>\n<li>Promovimi i k\u00ebrkimt shkencor dhe klinik p\u00ebr s\u00ebmundjet e rralla.<\/li>\n<li>Zhvillimin e trajtimit t\u00eb s\u00ebmundjeve t\u00eb rralla dhe ila\u00e7eve t\u00eb jetim\u00ebve.<\/li>\n<\/ul>\n<p>P\u00ebrmir\u00ebsimi i cil\u00ebsis\u00eb s\u00eb jet\u00ebs s\u00eb pacient\u00ebve duke iu ofruar mb\u00ebshtetje sociale, mir\u00ebq\u00ebnie dhe sh\u00ebrbime n\u00eb edukim.<\/p>","protected":false},"excerpt":{"rendered":"<p>Shoqata Shqiptare e S\u00ebmundjeve t\u00eb Rralla b\u00ebhet pjes\u00eb e Eurordis (European Association of Rare Diseases) EURORDIS &#8211; Shoqata Europiane e S\u00ebmundjeve t\u00eb Rralla \u00ebsht\u00eb unike n\u00eb llojin e saj, nj\u00eb [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2369,"comment_status":"open","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6,7],"tags":[],"_links":{"self":[{"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/posts\/2367"}],"collection":[{"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/comments?post=2367"}],"version-history":[{"count":2,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/posts\/2367\/revisions"}],"predecessor-version":[{"id":2370,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/posts\/2367\/revisions\/2370"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/media\/2369"}],"wp:attachment":[{"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/media?parent=2367"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/categories?post=2367"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/rda-al.com\/sq\/wp-json\/wp\/v2\/tags?post=2367"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}