Association of Rare Diseases wants to create a strong community of patient organizations and people living with rare diseases.
The aim is to create a community with either dedicated who have similar problems and to strengthen the voice of patients living with rare diseases in Albania and Europe.
BENEFITS OF MEMBERSHIP
- Join a community will all patients
- Do key institutions represented in Albania and Europe
- You will participate in meetings with members of the Rare Disease association, seminars, conferences and workshops to organized by the Association of Rare Diseases
- News and announcements will be posted on the website of the Association
- We will set up a online community for patients with the same disease in the website of the association
LEARN FROM EACH OTHER
- To learn from each other’s experiences