The Rare Disease Association is a non-governmental organization that organizes patients and individuals active in the field of rare diseases. This organization aims to improve the quality of life.
The Rare Disease Association is a non-governmental organization that organizes patients and individuals active in the field of rare diseases. This organization aims to improve the quality of life.
The Rare Disease Association seeks to create a strong community of patients and people living with rare diseases and to strengthen the voice of people living with rare diseases in Albania and Europe.
Patients will join a community.
Patients will be represented in the main institutions of Albania and Europe.
Patients will participate in meetings with members of Rare Sores Disease, at seminars, conferences and workshops organized by the Rare Disease Association.
News and announcements will be posted on the Association’s website
An online community will be established for patients with the same illness on the association’s website.