Shqip
INTERNATIONAL DAY OF RARE DISEASES
The First National Event of Rare Diseases.
The rare diseases day is held every year in the last day of February. The main objective of Rare Diseases Day is to increase the attention of wide public and decision taking bodies on rare diseases and their impact on patients lives. This campaign objectives are focused mainly in wider population and aims at increasing the attention of policy making bodies, public authorities, industry representatives, scholars, professionals in field of health care and everybody who is sincerely interested in rare diseases cause.
On Tuesday, February 28, 2017, will be held in Tirana the first event on rare diseases which gathers all patients and national experts on public health care, scientific research and medical industry to discuss on topics why and how should rare diseases become a part of global agenda in health care.
Some 50 participants registered in Rare Diseases Association to discuss on different ways on treatment of inequality and its improvement as well as on the access in medical care on evaluation of some 300 million people living with a rare disease all over the world.
This event will focus on definite role on national cooperation, in promotion of rare diseases as a global priority of public health and scientific research, will discuss how this national cooperation, which aims to become even international, it is fundamental to enhance research and innovation, increase access and in diagnosis, medicines and treatment, TO ENSURE A HEALTHY LIFE AND PROMOTE WELL BEING FOR ALL AGE GROUPS.
Speakers in the meeting will present greater national and international organisations. They will also present numerous projects, which will aim at helping patients of rare diseases.
The event was initiated by patients and doctors, and will be financed by important pharmaceutical representatives.