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Every single day thousands of people worldwide are newly infected with viral hepatitis yet the disease is entirely preventable. Throughout the world not nearly enough is being done to stop […]

Regional meeting for rare diseases patient advocates. Bringing together health and social care services for families with rare diseases. 7-9th of June 2019, Hotel Drim, Struga, North Macedonia. http://challenges.mk/mk/4767-2/ GAUCHER […]

“Symposium on Gaucher Disease” A symposium on Disease Gaucher was organized on October 31, 2017, with a panel composed of Prof. Dr. Paskal CULLUFI and Prof. Dr. Arndt ROLFS. On […]

The genetics of PKU Genes are present in every cell in the body. They provide the blueprint for each trait we have, such as eye color and height. Genes also […]

Albanian Rare Diseases Association becomes part of EURORDIS (European Association of rare diseases) EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 700 rare disease patients organization from more […]

The First National Event of Rare Diseases.

The rare diseases day is held every year in the last day of February. The main objective of Rare Diseases Day is to increase the attention of wide public and decision taking bodies on rare diseases and their impact on patients lives.

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