Shqip28Jul 2019
Every single day thousands of people worldwide are newly infected with viral hepatitis yet the disease is entirely preventable. Throughout the world not nearly enough is being done to stop […]
09Jun 2019
Regional meeting for rare diseases patient advocates. Bringing together health and social care services for families with rare diseases. 7-9th of June 2019, Hotel Drim, Struga, North Macedonia. http://challenges.mk/mk/4767-2/ GAUCHER […]
24May 2019
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06May 2018
Sorry, this entry is only available in Albanian.
25Apr 2018
Sorry, this entry is only available in Albanian.
04Feb 2018
The Day of Rare Disease takes place on the last day of February of each year. The main objective of the Rare Disease Day is to raise awareness among the […]
02Nov 2017
“Symposium on Gaucher Disease” A symposium on Disease Gaucher was organized on October 31, 2017, with a panel composed of Prof. Dr. Paskal CULLUFI and Prof. Dr. Arndt ROLFS. On […]
15Oct 2017
The genetics of PKU Genes are present in every cell in the body. They provide the blueprint for each trait we have, such as eye color and height. Genes also […]
30Sep 2017
Albanian Rare Diseases Association becomes part of EURORDIS (European Association of rare diseases) EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 700 rare disease patients organization from more […]
21Feb 2017
The First National Event of Rare Diseases.
The rare diseases day is held every year in the last day of February. The main objective of Rare Diseases Day is to increase the attention of wide public and decision taking bodies on rare diseases and their impact on patients lives.