The Rare Diseases Association organised on February 28, 2017, close to University Hospital Center “Mother Theresa”, premises its first meeting with all patients and doctors on the international day of rare diseases.

Present in this event were rare disease patients and different specialist doctors in University Hospital Center.

Head of Association Mr. Kristian Lekli presented some projects of the association, one of which was preparation of a special place where rare diseases patients could take their treatment in in most normal possible conditions, a project which moving towards its finalization, and the possibility in creation of treatment points in hospitals in Tirana and in districts. 

Some problems mentioned and discussed by patients were regarding their transport, problems which are moving towards solution by members of the association.