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The Day of Rare Disease takes place on the last day of February of each year. The main objective of the Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on the lives of patients.
The campaign primarily targets the public and also seeks to raise awareness among policy makers, industry representatives, researchers, health professionals and anyone who has an interest in rare diseases.
Awareness of rare diseases is very important because 1 in 20 people worldwide live with a rare disease. In spite of this, for most rare diseases there is no cure and many are not diagnosed. Rare Disease Day improves public awareness of rare diseases, encouraging researchers and decision-makers to look at the needs of those with rare diseases.
Source: EURORDIS