Albanian Rare Diseases Association becomes part of EURORDIS (European Association of rare diseases) EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 700 rare disease patients organization from more […]

The genetics of PKU Genes are present in every cell in the body. They provide the blueprint for each trait we have, such as eye color and height. Genes also […]

The rare disease association organized on 28.02.2017, at the premises of central university hospital “Nene Tereza” its first meeting with all patients and doctors in the international day of rare diseases.

The First National Event of Rare Diseases.

The rare diseases day is held every year in the last day of February. The main objective of Rare Diseases Day is to increase the attention of wide public and decision taking bodies on rare diseases and their impact on patients lives.

“Symposium on Gaucher Disease” A symposium on Disease Gaucher was organized on October 31, 2017, with a panel composed of Prof. Dr. Paskal CULLUFI and Prof. Dr. Arndt ROLFS. On […]

The Day of Rare Disease takes place on the last day of February of each year. The main objective of the Rare Disease Day is to raise awareness among the […]