30Sep 2017

Albanian Rare Diseases Association becomes part of EURORDIS (European Association of rare diseases) EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 700 rare disease patients organization from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, […]

15Oct 2017

The genetics of PKU Genes are present in every cell in the body. They provide the blueprint for each trait we have, such as eye color and height. Genes also carry the instructions to make the enzymes our bodies need to break down amino acids such as Phe into building blocks. These building blocks are […]

01Mar 2012

The rare disease association organized on 28.02.2017, at the premises of central university hospital “Nene Tereza” its first meeting with all patients and doctors in the international day of rare diseases.

21Feb 2017

The First National Event of Rare Diseases.

The rare diseases day is held every year in the last day of February. The main objective of Rare Diseases Day is to increase the attention of wide public and decision taking bodies on rare diseases and their impact on patients lives.

02Nov 2017

“Symposium on Gaucher Disease” A symposium on Disease Gaucher was organized on October 31, 2017, with a panel composed of Prof. Dr. Paskal CULLUFI and Prof. Dr. Arndt ROLFS. On the speech held by Prof. Dr. Cullufi, was offered a complete picture of Gaucher disease, which regardless the fact of being listed as a rare […]

04Feb 2018

The Day of Rare Disease takes place on the last day of February of each year. The main objective of the Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on the lives of patients. The campaign primarily targets the public and also seeks to […]

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